Reimagining care to end HIV marginalization, isolation, and pain.
We have work to do.
HIV viral suppression rates are climbing, but there is so much more to HIV than a viral load. For too many people, living with HIV still means living in the shadows, at the margins of their communities. I believe that now is the time to change the paradigm of HIV care to bring more people into empowering care. Marginalized people living with HIV have unique needs that simply cannot be accommodated in the confines of a 20-30 minute clinic appointment with referrals to outside agencies for primary care, behavioral health, and case management services.
Marginalized people living with HIV need and deserve comprehensive, integrated, empowering care in order to help them live the full lives to which they are entitled.
My purpose is to create and foster innovative, scalable models of clinical care that build community for marginalized patients, bringing more people into care, reducing the individual and social costs of untreated HIV, and empowering marginalized people to live their best lives.
To help achieve my purpose, I am introducing “A Bill of Rights for People Living With HIV”. I hope you’ll read it, embrace these principles, sign a petition and reach out to introduce patient-focused change in your clinical environment.
A Bill of Rights for People Living With HIV
Vision.
Click below to read about my vision for a world where no one living with HIV has to worry about being marginalized and abandoned because they have this disease.
Challenges.
Managing HIV is no longer, in the vast majority of cases, a clinical challenge. Ending the HIV epidemic is a political problem - the very people we are trying to engage and retain in care suffer from the unbearable burden of a syndemic of structural ills that discourages and even prevents them from engaging and staying in care.
Blog.
This is where you’ll find additional insight into why we must change our models of care and strategies and tactics that have proven useful to me. I post new content every two weeks. Subscribe and you’lll get fresh content sent directly to your inbox.
“Thank you for giving me a safe space to come and talk. When I’m here, I feel safe. I want to take my pills and take care of myself now.”
— PATHways Patient
Contact
Feel free to contact me with any questions, insights, or concerns. I am happy to discuss sharing appropriate content from other contributors on this site. I welcome others to join me to create safe spaces for those unable to do so for themselves.
Email
Robertson.Nash@HIVequity.com